What It’s Like to Have a Body That’s Literally Falling Apart

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For Katryna Kofton, simple tasks like shampooing her hair can end in disaster: her wrists might dislocate, or her thumb could fall out of place.

Kofton has hypermobile Ehlers-Danlos syndrome (EDS), a rare genetic condition that affects the body’s connective tissue. This means that her skin is incredibly stretchy and her joints overly flexible. Even her windpipe tends to dislocate.

While there is still no known cure for EDS, Kofton is learning to manage her life-changing illness with the help of her family, vlogging about her experience, and playing the ukelele. She shares her experience with the Cut, above.

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What It’s Like to Have a Body That’s Literally Falling Apart