What It’s Like to Have a Body That’s Literally Falling Apart
For Katryna Kofton, simple tasks like shampooing her hair can end in disaster: her wrists might dislocate, or her thumb could fall out of place.
Kofton has hypermobile Ehlers-Danlos syndrome (EDS), a rare genetic condition that affects the body’s connective tissue. This means that her skin is incredibly stretchy and her joints overly flexible. Even her windpipe tends to dislocate.
While there is still no known cure for EDS, Kofton is learning to manage her life-changing illness with the help of her family, vlogging about her experience, and playing the ukelele. She shares her experience with the Cut, above.
- How to Make the Most of the Holidays This Year
- Weruche Opia Wants Everyone’s Story Told
- Your Favorite Auntie is Here to Help
- Finding Style Inspiration in the Everyday
- Love in the Time of Quarantine
- What We Know About COVID-19 and Pregnancy
- How Three Pregnant Women Are Responding to COVID-19
- Advice from Italian Parents on Lockdown
- How West Side Story’s Shereen Pimentel Gets It Done
- Inside Athena Calderone’s Elegant Brooklyn Brownstone
- How Comedian Jo Firestone Gets It Done
- Inside Gertrude Vanderbilt Whitney’s Long Island Art Studio
- How New Yorker Illustrator Liana Finck Gets It Done
- Jonathan Adler and Simon Doonan Reveal Their Whimsical Greenwich Village Home
- Inside Kelly Behun’s Mesmerizing Apartment in the Clouds
- Inside One of the Last Bohemian Homes in Hotel Chelsea
- How Iliza Shlesinger Gets It Done
- How Hadestown’s Eva Noblezada Gets It Done
- 4 Women at the Top of Their Fields on How They Get It Done
- How The Daily Show’s Dulcé Sloan Gets It Done