What It’s Like to Have a Body That’s Literally Falling Apart

By

For Katryna Kofton, simple tasks like shampooing her hair can end in disaster: her wrists might dislocate, or her thumb could fall out of place.

Kofton has hypermobile Ehlers-Danlos syndrome (EDS), a rare genetic condition that affects the body’s connective tissue. This means that her skin is incredibly stretchy and her joints overly flexible. Even her windpipe tends to dislocate.

While there is still no known cure for EDS, Kofton is learning to manage her life-changing illness with the help of her family, vlogging about her experience, and playing the ukelele. She shares her experience with the Cut, above.

Watch Now

  1. Collector Dr. Joy Simmons Takes Us Inside Her Art-Filled L.A. Home
  2. In This Spectacular Kelly Wearstler Home, Comfort Comes First
  3. E. Jean Carroll on the Aftermath of Publishing Her Story
  4. The Enviable Loft Fran Lebowitz Has Never Liked
  5. What Does Sex and Intimacy Look Like for New Parents? | Sex Probz
  6. I Want to Role-Play With My Partner Without Making It Weird
  7. I Don’t Want to Sexile My College Roommate! | Sex Probz
  8. 3 Fashion and Beauty Professionals on How They Get It Done
  9. I’m Kinky But Broke. Where Do I Start? | Sex Probz
  10. How Do I Keep Things Sexy in a Long-Distance Relationship? | Sex Probz
  11. I’m Disabled. How Can I Improve My Sex Life? | Sex Probz
  12. Bobby Berk on the Power of Good Design, Queer Eye, and What’s Next
  13. The Creators and Stars of Hulu’s ‘Pen 15’ on Trusting Their Instincts
  14. Natasha Lyonne on How to Rise in Your Career
  15. A Day in the Life of 8 Successful Women
  16. Snooki’s Guide to Social Media
  17. The Most Petty Moments During Michael Cohen’s Testimony
  18. This Body-Paint Artist Transforms People (& Ariana Grande) Into 2-D Paintings
  19. Beyond ‘The One’: Exploring Modern Polyamory
  20. These Plus-Sized Yogis Made Yoga Their Own
What It’s Like to Have a Body That’s Literally Falling Apart